Re: NEWS: Progeria/aging progress

From: ABlainey@aol.com
Date: Fri Apr 18 2003 - 18:03:32 MDT

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    In a message dated 18/04/03 23:47:23 GMT Daylight Time, icorb@indigo.ie
    writes:

    > Progeria is I believe one of the worst diseases I know of. It's not only a
    > killer of children, but a slow killer. They get to see what it is they've
    > been cheated out. It's a tragedy for a child to die in an accident, but
    > for them to have to go through 14 or 15 years of watching their youth slip
    > away at 7-10 times the normal rate is horrific, and galling.
    >
    > This is a disease that as the Texans (apparently) say, " It Needs Shootin'
    > "
    >
    >
    > James

    This is great news and of great personal importance to myself and family. One
    of my daughters friends died recently from Progeria. Very sad and a great
    loss to all that knew her.
    Although the number of children born with this syndrome is very low
    (currently around 30 worldwide) I would agree that "it does need shootin" as
    it is a major step towards switching off the clock for all of us.

    Alex



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